Tuesday, June 16, 2009

5 Online Breast Cancer Support Groups

Article: Associated Press
Breast cancer is the second leading cause of cancer death in women after lung cancer and most of the women who have breast cancer know this. Online support groups for breast cancer can help you to obtain information to try and beat these odds as well as help you to overcome some of the struggles that you are facing. Online support groups for breast cancer has helped many people to understand what they are going through by chatting with others that have been there or are currently going through the same things that you may be.

This list of online support groups for breast cancer can offer you many different advantages such as giving you a preview of what each site entails and if it is the right group for you.

Online support groups for breast cancer: Breast Cancer Support

If you are looking for support that comes from far and wide then you have to check out this support group and donations are welcome. The donations go to keep up the website which I am sure that you will enjoy. It is free to join and you don't have to be a member to read through their comments, suggestions, and other parts of the site. Breast cancer is not funny but what is is their link to Take Your Daily Laugh Medicine that is posted by members of the breast cancer support group. The jokes are hilarious and without meaning too I spent around an hour laughing at things that wouldn't otherwise be funny. I believe that all breast cancer patients and survivors will fall in love with this breast cancer support group.

Online support groups for breast cancer: Revolution Health Breast Cancer Support Group

This breast cancer support group is a smaller one but still meaningful. It is a place to share information on breast cancer as well as post your concerns and comments. There are some group goals that the members try to focus on such as being active in the forum and calling on each other for support during this difficult time. Both breast cancer patients and survivors are welcome in this breast cancer support group.

Online support groups for breast cancer: Pink-Link
Pink-Link is free to join and it consist of a network of people such as survivors, family members, medical pros, people who care about those with breast cancer, and current breast cancer patients. In this breast cancer support group you can ask questions, share your experience, search for information, share a resource and help one another through times when life doesn't seem fair.

Online support groups for breast cancer: Local support groups

There are a ton of places that you can go for breast cancer support and now their is even an online resource to help you find a breast cancer support group that is local. A local breast cancer support group may be better for you if you are looking for local meetups or just want to chat with someone going through the same thing in your home state that can give you recommendations and help.

Online support groups for breast cancer: Share Cancer Support

This online support group is for women who have breast cancer or ovarian cancer. This website has a list of links, information, special events, and programs. You can chat with people who are going through some of the same things that you are and get support and recommendations to help you through it.

Friday, June 5, 2009

Ginger's May Update

Title: Have I really been married for 10 years?

Every once in a while do you ever have those moments where reality just slaps you in the face? Boom! And you have to stop for a moment and realize where your life is at and how fast time flies. May was that kind of month for me. Travis and I celebrated our 10 year anniversary on the 20th and it was one of those days when I really thought about all that had happened in those 10 years and how fast time had gone by.

In 10 years we've moved 3 times, had 3 children, battled breast cancer, made 3 job changes, dealt with psycho in-laws (Trav's side ;) ), put in 3 yards (NEVER again), driven 9 different automobiles, traveled to Kauai twice, laughed and cried and made incredible memories with our kids and the list goes on.

After Trav and I sat and discussed everything, we both were overwhelmed with how many blessings we've been given over a 10 year period. The fact that we found each other to begin with was a HUGE blessing. When I was serving a LDS mission in Michigan I wrote a list titled 'I want to marry a guy...' On the list I wrote everything that I really wanted to have in a husband. I wanted a guy that would take me hiking during the day and to the opera at night. I wanted someone who was good with kids, someone who would make me laugh and someone who would fit into my family well. When I was finished the list totaled around 39 things that I really wanted to have in a husband. Now - being that I'm a smart girl and had dated many a guy in the past - I knew I was really insane to think I'd find someone that fit all 39 items.

Then I met Travis. And there are only 3 items on the list that he didn't comply with. He can't sing, he can't dance and his mother hates me. (But we'll save that for another post - long story) I'm not saying that Travis is perfect - but he's perfect for me. I truly feel blessed to have him in my life and for his strength and willingness to stand by through the whole cancer episode. Thanks hun.

I'm so grateful to have 3 wonderful children who, despite all the whineing, are really good kids. They are my greatest accomplishment. I'm grateful to be alive to celebrate my 10 year anniversary and I'm planning on going on a HUGE trip to celebrate my 50th anniversary.

Time really does goes quickly and now that I'm older I can really appreciate all the times my mom said - Don't try to grow up too fast. I'd suggest taking some time today to think about all the wonderful things that have happened to you in the last 10 years. Don't worry about remembering the bad moments, leave them in the past. Just focus on the good times and I know you'll be smiling as the happy memories replay in your mind.

All my love,

Ginger

Wednesday, May 27, 2009

Q&A: Commonly Asked Questions

Courtesy of ABC News
Question: In addition to mammograms, are there other types of scans or tests that can be done to detect breast cancer?

Answer: Other tests, such as an ultrasound, can be useful, not in screening, but to determine whether or not a mass in the breast is a cyst or a solid. MRIs of the breast are being used more commonly, especially in women who are at a high risk for breast cancer, such as those who have one of the genetic predispositions or women who have had previous breast cancers in whom we are questioning the results of a mammogram; MRIs may be helpful in this setting. But at this particular point, mammograms are still the best screening test for breast cancer.

Tuesday, May 19, 2009

Proof that Breast Cancer can affect anyone.

Ten-year-old California girl battles breast cancer

Updated Tue. May. 19 2009 1:50 PM ET

CTV.ca News Staff

A 10-year-old California girl is battling a disease many girls her age have not even heard of: breast cancer.

Fifth-grader Hannah Powell-Auslam of La Mirada, Calif., was diagnosed just over a month ago with Stage IIA invasive ductal carcinoma, her parents write on the blog. The diagnosis was later changed to invasive secretory carcinoma, a related cancer that is more slow-growing.

Both forms of cancer are extremely rare in girls of Hannah's age; cases have only been documented in a few hundred girls in this age group. The American Pediatric Surgical Association reports that less than one-tenth of one per cent of all breast cancer occurs in children or adolescents.

Hannah was diagnosed after complaining to her mother of an itch on the side of her chest. When her mother checked the area, she found a lump and made an appointment with the girl's doctor.

Doctors told Hannah's mother that there was little chance that the lump would be cancerous but ordered an ultrasound anyway. The doctors were wrong. The ultrasound revealed a tumour in the girl's breast that spanned nearly two inches.

"I didn't really know what cancer is. I was just crying and I couldn't stop," Hannah told local newspaper, the Whittier Daily News.

Hannah has now had a partial mastectomy to remove the tumor.

Because juvenile secretory carcinoma is rare, there is little good data on it. However, it is thought to be slow-growing and less aggressive than adult cancers, and patients usually have an excellent prognosis.

Hannah's doctors say it appears her cancer has spread into her lymph nodes. She is scheduled to have a second surgery and may undergo chemotherapy.

Hannah's family has started a blog, called OurLittleSweetPea.com, which has been overwhelmed with traffic since the girl's story began making headlines this week.

Friday, May 8, 2009

Susan G. Komen Race for the Cure


The 13th annual Komen Salt Lake City Race for the Cure will be held on Saturday, May 9, 2009 at The Gateway Mall at South Temple & 400 West in Salt Lake City, Utah.

The 5K (3.1 miles) run and walk and the 1 mile fun run/walk will start at 8:30am at a new start line. Both events will start on 300 W & North Temple heading north, and coming back to end near the Gateway Legacy Fountain.

This is a great event to help support The Susan G. Komen Breast Cancer Awareness Fund. Komen Affiliates award grants to local hospitals and community organizations that provide breast health education and breast cancer screening and treatment programs for medically underserved women. Remaining net income supports the Komen Award and Research Grant Program, which funds groundbreaking breast cancer research, meritorious awards and educational and scientific programs around the world.

There are many breast cancer survivors, friends and family members that turn out to this event to celebrate their lives and to contribute to finding a cure for this disease.


Please help in the fight against breast cancer on Saturday, May 9th!

You can still register the day of the event!

Tuesday, April 28, 2009

Ginger's Entry :Johnson's Don't Quit

A while ago I read a great book called The Parenting Breakthrough by Merilee Boyack. It's probably the best book I've ever read on how to raise a child to be an independent, upstanding adult and how to teach valuable life lessons like investing and saving for the future. In one section, the author explains how in their family they have several motto's in place so that when a situation arises were a lecture would normally be given, they just say the motto and the kids get the point. I really liked that idea, because all you parents out there know how fun it is to lecture time and time again about the same things. :) The motto I chose for our family was: Johnson's Don't Quit. And believe you me, it comes in handy ALL the time. From yard work, to home work, to everything in between! I use it often and sometimes my kids use it on me.

We started using this motto way before the breast cancer hit, but during treatments it was something I could live by and teach my kids about. No matter what - Johnson's don't quit. I said it to myself many times when it was hard to take the chemo medicine. I said it to myself when I had to get up and be a mom, even though I didn't feel like it. I had to - I couldn't quit. My kids needed me; my new born baby needed me; my husband needed me. I had to be strong.

I ended my chemo treatments in Nov. '07 and the following May (so 7 months later) I decided that it was time to get back into life and the things I enjoyed physically. Travis and I had always wanted to hike The Narrows in Zion National Park and it seemed like the perfect thing to do at the time to celebrate my victory over breast cancer. Little did I know how long it takes a person's body to recover from the effects of chemo combined with pregnancy. I soon learned. Seven months wasn't nearly enough time for what I was about to do and I learned that the hard way.

We called our friend Andy who had hiked the Narrows before and he gladly agreed to be our guide. We only had one day to complete the hike and I was overly confident that I could handle it. We drove down to St. George on Friday night and had the worst night sleep EVER. I don't know if it was the anticipation or the uncomfortable beds, but I think I got about 2 hours of sleep that night. The next morning we were supposed to catch the 6:30 am shuttle to take us to the top of the trail that is outside the park. We missed the shuttle because of permit issues and had to reschedule for the 11:00 shuttle. Due to the delay we didn't start the hike until after noon on Saturday. I didn't think anything of it. No big deal - we'd just walk faster....right????

Now for those of you who've never hiked the Narrows, it's a 17 mile hike through slot canyons. (Yes, I said 17 miles.) Normal people (or at least smart ones) hike it in two days and camp overnight because of the length and the fact that you have to cross the Virgin River about 100 times and climb over lots of rocks as you go down the slot canyons. But oh no - not us. I think the chemo damaged by reasoning capabilities at the time to delude me into thinking that a person just 7 months out of chemo would be strong enough to handle 17 miles. Eesh. What was I thinking!

I have another Motto that I use quite frequently too. It's from Dori on Finding Nemo: "Nothin' in my noggin!" :)

The initial part of the hike isn't bad - just a trail through a field following a small stream and then walking on smooth rocks through some slot canyons. No problem. By the seven mile mark I was sooo proud of myself. I felt reasonably well and confident in my abilities. We stopped at Big Springs for a 20 minute lunch before beginning again. I spoke up about how well I was doing and how proud I was of myself and my friend Andy quickly burst my bubble. "Don't start congratulating yourself, we haven't reached the hard part yet." Still, I was confident I could do it. No sweat.

The 'hard part' Andy was referring to is a section called Wall Street because of it's many up's and down's. I fondly remember it, and the last 5 miles that followed, as Hell. I have never been so fatigued in my entire life. I have never wanted to lay down and just pass out - even when I was on chemo. By the time I reached mile 10 my body started shutting down. I was in the most excruciating pain I have ever experienced in my entire life and it took everything inside me to put one foot in front of the other. My body just wasn't ready to handle 17 miles and it was screaming at me to stop. Several times Andy and Travis had to come back for me because my legs just wouldn't go any further. There would be rocks to step over and I would just stand there and cry. Rocks that were only a foot high looked like Mount Everest to me.

One main problem about hiking the Narrows is there literally is no way out expect for the end. The walls are so high and sheer that it would be impossible to climb them...not that I could anyway at that point. The sun was going down and we had been walking in water for over 8 hours minus our 20 minute lunch. Now repeat after me: I-N-S-A-N-E!

My entire body ached with fatigue and I didn't know how I was going to make it the rest of the way. I was pleading with Heavenly Father for additional strength and the will to make it. It was then that Travis came and answered my prayers.

"Hun, I know this is tough and I am so proud of you for what you've accomplished. You are amazing to me. We have two choices though. We either keep going and finish or we stop here and try to find a way to keep warm until the morning. Just remember Ging, Johnson's don't quit."

And that was all it took. Three words. Our family motto: Johnson's Don't Quit.

I took a deep breath, reached out for Travis and put one foot in front of the other until we reached the end. I pushed through the pain and repeated the motto in my head over and over. We finished the hike around 10:00 pm that night. My body was unbelievably fatigued to the point of exhaustion but the joy of finishing such an incredible feat was immense. I had done it - chemo ridden body and all.

We recently returned from visiting Zion National Park with our children a few days ago. I can't tell you the great pleasure I felt to be able to show my children a part of where we hiked and tell them the story behind that trek. To look into their eyes and to see that they knew their mother did it. She didn't quit. She didn't give up. She pushed through the pain and discomfort and made it to the end.

I learned a lot of things from that experience. First of all, I can do hard things. Second, I can push my body harder than I ever imagined. And Third, I am a Johnson and Johnson's don't quit.

'Being defeated is often a temporary condition. Giving up is what makes it permanent." ~ Marylin Vos Savant

In life we are blasted with challenges all around us. Some happen by chance and others come as a result of our own actions. We always have the choice to give up or to keep fighting and win. I hope you will fight. I hope you will rise up to the challenge and face it head on. We are much stronger than we give ourselves credit for and we can do amazing things...even if the odds are against us. Don't Quit!

All my love,

Ginger

Tuesday, April 14, 2009

I Think Pink - Women's Issues

We would like to thank each of you for your support of breast cancer and the care and concern you demonstrate for the women whose stories are published on this blog. Our hope is that by sharing their story, women experience some type of healing, record the details of their challenge for themselves and others, and take courage in knowing that their experience could be of profound help to another woman in another place with a similar reason to fight. Additionally, it is often therapeutic to read your own story and find that source of strength deep within yourself; a well of inspiration that only comes from reflecting on where you are now and truly how far you have come. There is extreme strength in the power of the human spirit. We want to sincerely thank you for reminding us of that and demonstrating it through the lives you lead.

The fight against breast cancer is real and the powers and interests invested in this cause are growing every day. Breast cancer fighters and survivors are making their stories known and more and more people are taking preventative action in their own lives. The attention is changing individual lives, which is what I Think Pink is all about.

We know that the realm of inspirational, powerful women is not limited to those touched by breast cancer. There are many other issues that reach deeply into the core of women everywhere. Some issues that we've thought about are: motherhood, women in active duty, entrepreneurs, community leaders and volunteers, cancer fighters, overcoming disabilities, heart disease, abuse, struggles with infertility and adoption, MS and a myriad of other issues.
We know that every day there are ordinary women who are doing, thinking, hoping, teaching, leading and living in extraordinary ways. Their lives and their stories are unknown and their personal struggles and triumphs are untold and uncelebrated. And we want to change that.

We need your help. We want to know what women’s issues affect you. What special interests do you have? What causes do you champion? What extraordinary women do you know? Whose story do you want to share? What life can you change by sharing your story or the story of someone you know?

Please respond by leaving a comment on this blog or by responding to the poll on the left hand side of this page. We’ve seen the power of I Think Pink and www.ithinkpink.org. We know the strength that is within you. Please let us help you share your story.